My name is Tabatha Marshall from Hinesville, Georgia. I am the mother of a 15-year-old XLP child. He is the only living one in my family that has the disease. 4 other little guys predecease him. I would like to…
Bursting with pride in our bubble boy Brave Alex Herbert's first public appearance since undergoing a bone marrow transplant was to help raise awareness of the hospital and medical staff who saved his life. The four-year-old spent eight weeks in…
A little boy's major miracle To look at Grant Hinton is to see a beautiful boy who survived to be in this world when his family against all odds found the answers needed to save him. He is the son…
UCLA physicians announced today that three young boys - each born with a defective immune system like the "boy in the bubble" - underwent umbilical-cord blood transplants from unrelated donors, and two years later, are seemingly cured of their immunodeficiencies. …
Henry Bancroft, who has spent the last 13 weeks in hospital, suffers from XIAP, a rare condition that means he spends much of his life in hospital and has had a bone marrow transplant.
http://www.watfordobserver.co.uk/news/16396926.family-appeal-to-get-the-perf/
After receiving a trial medication that not only works, but lets him lead an ordinary life, 12-year-old Landen Smith may see it go away.
http://www.oneidadispatch.com/general-news/20180618/sherrill-mother-fighting-for-sons-life
For Jacob Martinez, blood and platelet transfusions are part of daily life. So is confinement to a tiny room sealed off from the contaminates of the outside world.
http://www.pasadenastarnews.com/ci_11367027
INDEPENDENCE - Earning a black belt in taekwondo didn't make Adam Steele a warrior.
http://www.kenton.k12.ky.us/districtNewsArticle.aspx?artID=1456
Joe Spitzzeri, Jr. walks to the mound to throw out the first pitch Thursday before Kaneland's Western Sun Conference game against Sycamore. Spitzzeri is being treated for a rare genetic disorder.
http://www.dailyherald.com/story/?id=187947
A church is appealing for mixed-race bone marrow donors on behalf of a young Muslim boy diagnosed with a rare and life-threatening genetic disorder.
http://news.bbc.co.uk/1/hi/england/3534970.stm
Annual blood donation session to honour the memory of Jordan DeBalli.
http://articles.dailyamerican.com/2008-05-10/news/26320722_1_blood-drive-blood-donors-platelets