One of the key XLP Research Trust's core objective is to…
Fund the highest quality international research into the cause, inheritance, diagnosis, treatment and management of XLP and to develop a cure for these genetic disorders.
When funds allow, we have an open call for applications for research funding. For a small charity this is quite an undertaking - so please bear with us whilst we raise the necessary money.
We've found these biennial events to be key to disseminate the very latest research on XLP1 and XIAP and to encourage collaboration. We are planning to hold the next research symposium in the autumn of 2024; the C19 pandemic had an impact of restricting research during the various lock downs - holding back XLP (and other) medical research. Please click on the symposium tab (above) for more information and to see the agendas from previous symposiums.
We've curated published papers on XLP1 and XIAP and presented the papers title and links to the full paper on two web pages. We've then split them under titles of 'Reviews' Case Studies' and 'Basic Research'. The papers included here have publication dates of 2018 onwards.
